THIS PAGE WILL CONTAIN LINKS TO ARTICLES OR STORIES OF HOW MISDIANOSIS CAN HAPPEN AND WHY IT IS SO PREVELENT AMONG AUTOIMMUNE ILLNESSES.
OFTEN WE EXPECT EVERY DOCTOR WE SEE TO KNOW ABOUT EVERY ILLNESS THERE IS. THIS IS NOT
POSSIBLE SINCE MANY ARE VERY RARE OR HAVE SYMPTOMS IN COMMON WITH OTHER ILLNESSES.
THERE ARE AN ESTIMATED 6000 RARE DISEASES ACCORDING TO NORD (NATIONAL ORGANIZATOION OF RARE DISEASES). ADD THE DISEASES THAT ARE NOT RARE AND HOW DO YOU EXPECT A DOCTOR TO KNOW ABOUT EVERY ONE OF THESE DISEASES?
HAVING SAID THAT, IT IS IMPORTANT THAT DOCTORS DO NOT JUST DISMISS PATIENTS WITH PERSISTANT SYMPTOMS AS "YOU ARE OVER REACTING". WE AS PATIENTS MUST ALSO BE OUR OWN ADVOCATES. BE CALM WITH THE DOCTOR, EXPLAIN IN DETAIL WHAT IS HAPPENING, AND ASK QUESTIONS.
A PATIENT WHO IS IRRATIONAL, HYSTERICAL, AND OUT OF CONTROL WILL CAUSE THE DOCTOR TO NOT TAKE THE PATIENT SERIOUSLY. GO TO YOUR DOCTOR PREPARED WITH NOTES, DATES, SYMPTOM PROGRESSION, AND OTHER DOCUMENTED FEELINGS YOU ARE EXPERIENCING.
HERE IS A CLASSIC EXAMPLE OF HOW A PATIENT CAN GO FROM HEALTHY TO MULTIPLE ILLNNESSES BY DOCTORS MISDIAGNOSING THE SYMPTOMS. YOU WILL SEE HOW THEY OVERLOOKED PROPER PROCEDURES, TO THINKING THE PATIENT JUST HAD A MINOR PROBLEM, TO THINKING THE PATIENT MAYBE BE A MENTAL CASE. THE RESULTS ARE DEVASTATING.
I WANT TO THANK JANET FOR TELLING HER STORY IN SUCH A CANDID MANOR. i HOPE IT WILL HELP MANY PATIENTS, FAMILIES, AND DOCTORS COME TO UNDERSTAND THE NEED TO APPROACH EACH PATIENT CAREFULLY AND NOT JUST THINK THERE IS LITTLE OR NOTHING WRONG:
Here is another example of misdianoses only this time from the "It's in you head" catagory. These two cases are again examples of how hard it is to get accurate diagnoses when symptoms of SPS are similar to other illnesses. In these two cases it is easy to see the symptoms leading the doctors in the wrong direction.